Thursday, August 6, 2009

Today was the 2nd day of the treatment schedule and Mac is doing very well. He never complains and he tells the doctors & nurses exactly how he's feeling. He's got to go through 4 days of the doozy immunosuppressive drug ATG, and while he's receiving that he has to be constantly monitored. (That's the drug with horse serum.) The first day was 8 hours, the other 3 days are 4 hours. His side effects haven't been too bad from what we've been told - some chills and hives. He's also getting a steroid for 2 weeks and another immunosuppressive drug (this one he will stay on for the duration and is the one that may make his hair grow more.) Mo and I are learning to flush his line and change his dressing. On Sunday we will learn how to give him his injection (the drug that will encourage his bone marrow to work - he will be on this long term as well.) We are thinking of adding the initials RN to our names. Mo has never washed his hands this much in his life!

Thank you all for your continued prayers. The people here are amazed by the stories we tell them of the great support we have received from the Ridge and beyond. We feel lucky to have so many friends and family thinking of us and helping us get through this.

3 comments:

  1. Sounds like Mac is a very brave boy and that things are going about as well as can be expected at this point. I continue to pray for all of you.

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  2. glad to hear the ball is rolling and his treatment has started! he is my hero, i tell you!!!! give him big hugs from all of us!!

    please let me know if there is ANYTHING you need regarding peter and annie in the coming few week and there after. i am willing to help out on any days. i can take peter one day a week to do homework or shuffle kids around. just let me know.

    just remember we are all here "holding down the fort" and we would all help with anything you need!
    love to you all!!

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  3. Who'd have known that Phil's handwashing techniques would come in so handy!

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