Wednesday, January 22, 2014

Happy New Year! In my last entry, I said I'd write again in October, but suddenly it's January and I'm just updating! Since Memphis and doctor's visits no longer consume our lives, I forget about the updates. That's a good thing, I have to think!! So in a nutshell, here's what happened over the fall: We went to Memphis at the end of August because Jesuit had a day off. Mac's counts were a bit funny, and he had a back to school cold, so we attributed the weird counts to that. We continued with the plan to stop the immunosuppressing medicine, Tacrolimus, and check again at NO Children's Hospital in Sept, Oct, and Nov and then return to Memphis during the Christmas vacation. His hemoglobin and ANC went back to normal after his cold in August. But for some reason, the platelets dropped during the fall, once as low as 49K. That of course sent me into a panic, but they were up a little when we went back to Memphis in Dec. So, more waiting and watching. Hahaha - you'd think I would be used to that by now. We are decreasing the shot he gets by 25%, and we'll see what happens to his counts over the Spring. We go back to Memphis at the end of March. Our hope of course is that his counts remain stable and we don't find out that he is dependent on the shot to keep things up.

On another note, Team MacAttack participated in the St. Jude marathon weekend events in early December for the 5th time! We raised $30K! Thanks to everyone who contributed to our team and this great cause! Unfortunately, due to the winter storm passing through Memphis, a state of emergency was declared for the area, and the race had to be canceled. But... all the other (indoor) events went on as planned and we managed to keep ourselves busy for the weekend. As usual, a wonderful Saturday night dinner was hosted by Gail & Eric, and that is always fun!

Hope 2014 is treating you well so far! Thank you for checking in and keeping us in your prayers!