It was a rough weekend for us, but Sunday afternoon things got calmer. Today Mac had an MRI to see what was going on in his brain. We'd heard grumblings all weekend about PRES syndrome, which is what the MRI confirmed. This basically means the seizure happened because of the steroid, the cyclosporin, and his elevated blood pressure. So now he is on a BP medicine through his IV as well as an anti seizure medicine. They are taking him off the cyclosporin for now. His demeanor has changed - he's very irritable and sensitive to light and touch. However, the R in PRES stands for reversible, so it will take time but the real Mac will reappear. I assume we'll be in ICU for a while now. They are doing another EEG tomorrow just to make sure he is not having anymore sub clinical seizures and will do another MRI next week. There are still other issues, but they are being maintained and have taken a back seat to his brain - his very funny, very smart 11 year old brain.

Mo and I are hanging in there. The nurses in ICU make sure you take care of yourself while they help take care of your child. The doctors here persevere no matter where the path takes them. The deacon and priest from St. Mary’s have been a tremendous source of strength. But, our long road just got longer which means your prayers just got even more needed. Thank you as always for thinking of us, praying for us and checking in.