Monday, November 16, 2015

Well, we gave it 16 weeks, and Mac had absolutely no response to the Eltrombopag, so he just stopped it this weekend. His platelets stayed at 19K pretty much the last 2 months. It's almost comical... and statistically weird! Everyone's counts go up and down throughout the days, weeks, months. Tiny increments of change, but literally every 2 weeks when we get Mac's labs, his platelets are at 19K. He's consistent I guess!

So, where are we now? Mac is still fine, doing great in school and enjoying himself. He has applied to 4 colleges, and has a few more to apply to. He's tired of writing essays, but otherwise good! We'll keep checking labs here until we go to Memphis over the Christmas break to discuss options. I don't think we have many options, except do whatever it takes to get him through May, and then do a Bone Marrow Transplant and defer college a year. Yuck! A preliminary search has shown that he has potential donors, so that is good news! I don't know the details of the donors (or how close a match they are) yet, but we'll discuss it all in December.

The roller coaster continues... Thanks for checking in and keeping us in your prayers!

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