We went to Memphis earlier this week for another check up. Mac's counts were good - hemoglobin back to 10, platelets 92K, and so now we start with plan B: decrease the 2nd medicine while keeping the first one (the GMCSF shot) at a low level. Where will this take us? Hopefully stable or up! I am hoping that we do not find he is dependent on the medicine to keep his counts up, because that would lead us straight to transplant. (And there is never a good time in a kid's life to take a year off and have a BMT!) They also sent some labs off to test his telomere length - that is a word you haven't heard in a while. Suffice it to say that hopefully his telomeres are longer than they were 2 years ago. We also had our final appointment with Neurology as he has been off the anti-seizure medicine for a month. He passed all the tests and we got to say adios to that department.
So, in this month of Thanksgiving, I am once again thankful Mac is alive, in school and having a good time. I am thankful he has been transfusion independent since Feb. 2010. I am thankful he is smart and schoolwork comes easy to him as his health has been such a challenge. I am thankful God has given us the strength to get to where we are. I am thankful for St. Jude and the good work they do for sick kids. And I am thankful to you - for always checking in and keeping Mac in your prayers.
Remember someone once told me we could be very specific when talking to God? We're 2 years out and I was hoping to see the light at the end of the tunnel by now. Instead, the prayers we need now are for stable/upward moving counts as we decrease the Tacrolimus and improved telomere length. That's it! One day at a time!
Happy Thanksgiving!!
Will continue to pray for Mac's complete healing and for strength for your family. There is much to be thankful for. Keep the faith. Happy Thanksgiving to you all.
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