Mac has been very busy since the last post! He graduated from 7th grade and then we took a graduation trip to Disney/Universal with 2 other families. He is still a roller coaster maniac, and can ride the scariest of rides over and over! It was great to see him having such a fun time! We also went to both waterparks in Disney since it was so hot, and he & his friends covered all the rides - including Plummit Summit at Blizzard Beach!
We were only home 2 days when it was time to go to Memphis again. Mac's hemoglobin was 10.5 again! This makes 3 labs in a row with a hemoglobin in the 10's. Could 10 be the new 9?! I hope so! Platelets still hover around 100K. Enough to live a normal life, but not enough for contact sports or heading a soccer ball. We will decrease the shot to the tiniest amount and check labs here in 1 month and then back to Memphis in 2 months. Our lab checks are getting more spread out... another great sign of his stability and recovery!
As always, our visits to Memphis are a bit of a reality check. While Mac is hovering on the brink of "normal" he is leading a fairly normal life. But seeing the kids there remind us of how lucky we are. We ran into a family whose son is on his 4th Bone Marrow Transplant. Four! Makes Mac's journey seem like a walk in the park. (And this last transplant seems to have done the trick as they will be heading home within the month cancer free!) St. Jude continues to work tirelessly to cure everyone they can! I am so thankful we ended up there and so thankful we made it this far!
We have a half busy, half lazy summer ahead - a couple of camps for all the kids, a trip to the beach, and some down time to relax. Mac may attend some soccer evals this week to see if there may be a place for him on a team in the fall. We'll see how he does! (And definitely no heading the ball for the time being!)
Thanks for checking in and keeping us in your prayers! Have a great summer!
Great news!! I take it you met the Simpkins, Brennan is an amazing boy and I am so happy for them. Have a great summer!
ReplyDeleteGlad things keep getting better. Enjoy your summer!!! Carinos, Tita'
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