We made another quick trip to Memphis at the end of last week. Mac's counts were better. I forgot to mention that due to his low counts mid-July, we got them checked again a week later and they were lower still. So we restarted the GM-CSF shot again at the second-to-lowest dose to give his counts a boost again. We will keep it at that level for about 4-6 weeks. Dr. Reiss said this is farely common. The tapering of both medicines will take a while; since he's not on protocol, we can taper, re-introduce, taper, re-introduce as they watch his counts. The theory of course is that eventually all meds will end and the counts will stay up. That is the goal, and that is what we're praying for. Keep that BMT out of the picture!!
It's always fun to go back to St. Jude because we love the whole Hematology dept. I call it our Cheers bar - where everybody knows our name!! Mac's officially going to start school next week (yikes!) and we are enjoying our final week of vacation with family at the beach. Now that we've reached the year mark, I can't help but think about "this time last year"... Today was the day his first line was put in and tomorrow is the day he started his first ATG (horse). Hmm.... I'll take Florida instead!!
Hope you are surviving the heat and enjoying the end of vacation. I will post again after school starts and we get his labs checked again at NO Children's in mid August. Thanks for praying for that pesky bone marrow to work!
I am so glad to hear that you are at least on a slight upward trend again. Team Mac Attack is impressive, you guys are awesome fundraisers and I am looking forward to seeing you guys again this year. Hopefully I will get to meet the star of the team since he was out of commission last time. Go Marrow Go!!
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